Pamphlets on Huntington's Disease, 1990-1999

Compiled by Renette Davis. For one alphabetical list of all types of resources see Bibliography of Huntington's Disease, 1990-1999

Guidelines for Genetic Testing for Huntington's Disease. Summary of Recommendations, HDSA, 1994, 1 page.

A Handbook About Care in the Home: Information on Home Care Services. AARP, 1982 (revised 1992) (Request publication #D955) Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

Hoy, Anne. Physiotherapy for Huntington's Disease Patients. 5 pages, 1991. Available from HDSA.

Huntington's Disease: Facts at a Glance. HDSA, 1994, 2 pages.

Klasner, Estelle R., M.A., CCC-sp, Reg. OSLA. Managing Swallowing Difficulties Associated with HD. Huntington Society of Canada, 1990, 13 pages. Available from HDSA or the Huntington Society of Canada, 13 Water Street North, Suite 3, P.O. Box 1269, Cambridge, Ontario N1R 7G6. Phone: (519) 622-1002.

Klasner, Estelle R., M.A., CCC-sp, Reg. OSLA. Managing the Communication and Speech Difficulties Associated with Huntington's Disease. Huntington Society of Canada, 1990, 9 pages. Available from HDSA or the Huntington Society of Canada, 13 Water Street North, Suite 3, P.O. Box 1269, Cambridge, Ontario N1R 7G6. Phone: (519) 622-1002.

A Matter of Choice: Planning Ahead For Health Care Decisions. AARP, 1992. (Request publication #D12776) Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

Medicare's Prospective Payment System: Knowing your Rights. AARP, 1995. (Request publication #D12330) Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

MEDIGAP: Medicare Supplement Insurance. AARP, 1994. Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

Rubin, Allen J., MD. Evaluating Driving Capacity in HD. University of Medicine and Dentistry of New Jersey, 1994, 11 pages. Available from HDSA.

A Shopper's Guide to Long-Term Care Insurance. National Association of Insurance Commissioners, 1993. To order, write: NAIC Publications, 120 W. 12th St., Suite 1100, Kansas City, MO 64193-0042, or call 816-374-7259. Free.

So You Got The News: What Happens Now? HDSA, 1988, revised 1993. Folded brochure.

Testing For The Huntington's Disease Gene. HDSA, 6 pages.

Werbel, Eileen. The ABC's of Government Disability Programs: SSD & SSI. HDSA, 1991, 4 pages.

Westphal, Beryl. Nursing Tips: A Collection of Caregiving Hints. 1995, HDSA, 9 pages.

Note: HDSA pamphlets may be ordered from Huntington's Disease Society of America, West 22nd Street, 6th Floor, New York, NY 10011-2420. Phone: 1-800-345-1968. For complete list of publications from HDSA see http://neuro-www2.mgh.harvard.edu/hdsa/catalog.nclk

Created by Renette Davis. Send comments to Renette by clicking here.

Last updated: Dec. 4, 2010